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Couple on mission for early diagnosis

Bill Bridgwater, a former executive with several multibillion-dollar companies and current Alzheimer's activist, and his wife, Twyla, discuss the disease at the Alzheimer's Association offices in Tulsa. Bridgwater was diagnosed at age 48 with early-onset Alzheimer's and now sits on the board of the national Alzheimer's Association. ADAM WISNESKI / Tulsa World
 
By KIM ARCHER World Staff Writer
Published: 10/30/2008  2:14 AM
Last Modified: 10/30/2008  2:35 AM

It was the odd things that tipped him off.

He would open a door and hit himself in the head with it. Or he would put the milk in the cabinet, instead of the refrigerator. He began to stutter and stumble, and couldn't complete a sentence.

"I was doing ridiculous things, to a normal person," said Bill Bridgwater, who had built a career in the upper echelon of the corporate world as a senior executive at four Fortune 1000 companies.

In his work, he traveled the world. So when he began to suffer severe insomnia, sleeping only 15 minutes at a time, he dismissed it as jet lag.

Bridgwater finally went to his doctor, who thought he had depression or post traumatic stress disorder. He had neither.

"I went to my employer and took some time off so I could find out what was wrong," he said.

Eighteen months and seven specialists later, Bridgwater was diagnosed at age 48 with early-onset Alzheimer's disease, a progressive and fatal disease that gradually destroys the brain.

That was four years ago.

"It's not who I am. It's a disease," he said. "I understand with a high degree of medical certainty that I will die from this disease. However, as a Christian, I am at peace with my diagnosis."

A graduate of East Central University in Ada, Bridgwater is now a member of the national board of the Alzheimer's Association. He travels with his wife, Twyla, to bring awareness to the early-onset form of the disease.

The Colorado couple was in Tulsa on Wednesday as part of that mission.

"We know today that Alz- heimer's begins developing 10 to 15 years before you ever see signs," he said.

Alzheimer's disease is the sixth leading cause of death in the U.S, according to the federal Centers for Disease Control and Prevention.

As many as 5.2 million Americans are living with Alzheimer's disease. And at least 500,000 of those people were diagnosed before age 65 with early-onset disease.

"The frightening thing is that general physicians know so little; you really need to become your own advocate," Twyla Bridgwater said.

That's why it's difficult to diagnose so early.

"Your average general physician would not presume that someone in their 30s, 40s or 50s would have Alzheimer's disease," Bill Bridgwater said.

He and his wife would like to see more people diagnosed as early as possible because medications can slow the progression of the disease.

"We're really advocating nationally for screening," Bridgwater said.

While medication has lessened his symptoms, he still needs his wife to keep him on track.

"I have to make sure his social calendar isn't overloaded," she said. "Now I remind him more of things."

He agreed. "If you tell me five things to do, I'll remember two of them."

Bridgwater said he and his wife of 30 years remember to laugh often. "If you dwell on negative things, you're going to miss the good moments," he said.

Knowing the average life expectancy following the diagnosis of Alzheimer's disease is 10 years, Bridgwater packs as much living into every day as he can.

"You're a guy with a terminal disease. I just think, 'If this was the last day of my life, how do I want to live it?' "




Kim Archer 581-8315
kim.archer@tulsaworld.com


10 warning signs of Alzheimer's disease

1. Memory loss. Forgetting recently learned information is one of the most common early signs of dementia.

What's normal? Forgetting names or appointments occasionally.

2. Difficulty performing familiar tasks. People with dementia often find it hard to plan or complete everyday tasks. Individuals may lose track of the steps involved in preparing a meal, placing a telephone call or playing a game.

What's normal? Occasionally forgetting why you came into a room or what you planned to say.

3. Problems with language. People with Alzheimer's disease often forget simple words or substitute unusual words, making their speech or writing hard to understand. They may be unable to find the toothbrush, for example, and instead ask for "that thing for my mouth."

What's normal? Sometimes having trouble finding the right word.

4. Disorientation to time and place. People with Alzheimer's disease can become lost in their own neighborhood, forget where they are and how they got there, and not know how to get back home.

What's normal? Forgetting the day of the week or where you were going.

5. Poor or decreased judgment. Those with Alzheimer's may dress inappropriately, wearing several layers on a warm day or little clothing in the cold. They may show poor judgment, like giving away large sums of money to telemarketers.

What's normal? Making a questionable or debatable decision from time to time.

6. Problems with abstract thinking. Someone with Alzheimer's disease may have unusual difficulty performing complex mental tasks, like forgetting what numbers are for and how they should be used.

What's normal? Finding it challenging to balance a checkbook.

7. Misplacing things. A person with Alzheimer's disease may put things in unusual places: an iron in the freezer or a wristwatch in the sugar bowl.

What's normal? Misplacing keys or a wallet temporarily.

8. Changes in mood or behavior. Someone with Alzheimer's disease may show rapid mood swings from calm to tears to anger for no apparent reason.

What's normal? Occasionally feeling sad or moody.

9. Changes in personality. The personalities of people with dementia can change dramatically. They may become extremely confused, suspicious, fearful or dependent on a family member.

What's normal? People's personalities do change somewhat with age.

10. Loss of initiative. A person with Alzheimer's disease may become very passive, sitting in front of the TV for hours, sleeping more than usual or not wanting to do usual activities.

What's normal? Sometimes feeling weary of work or social obligations.

If you've noticed memory changes that are worrying you, call the Alzheimer's Association at (866) 259-4199. For more information about Alzheimer's Disease, go to www.alz.org.

Source: Alzheimer's Association


Volunteers needed to give caregivers a break

The Oklahoma and Arkansas chapter of the Alzheimer’s Association needs volunteers to provide respite care for caregivers, said caregiver consultant Cathy Sullins.

“It’s one of the most heartbreaking things that I see,” she said, noting caregivers who are stressed out and tired mentally and physically by taking care of their loved ones.

Many caregivers die before their loved ones with Alzheimer’s disease do, said early-onset coordinator JoAnn Webster.

Caregiver respite isn’t always sitting by somebody’s bed. Many people with early-onset or early stage Alzheimer’s disease would like to go golfing, fishing or to lunch while their caregiver gets a break, she said. “It’s a huge need,” Webster said.

The chapter also needs volunteers to staff events such as the Memory Walk or the Memory Gala, to help send out the quarterly newsletter, or to provide office support.

To learn about volunteer opportunities, call 481-7741.



By KIM ARCHER World Staff Writer

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If you see a comment that violates our terms and conditions, please help us by clicking the "Report this Comment" link next to a comment. That will alert the web staff to review the comment. Thank you.  -- Web Editor Jason Collington
 
 
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Anne M. Green, Tulsa (10/30/2008 12:28:59 PM)
So what exactly does the disease do that causes death? The list of symptoms is helpful in diagnosis, but I'm curious as to the actual "cause" of an Alzheimer's death.

Do the medications slow the "disease" or just the "symptoms" of the disease?
Report Comment
alzstaff, Tulsa (10/31/2008 9:55:42 AM)
In response to Anne Green's comment, Alzheimer's disease is a prorgressive, incurable, degenerative brain disease that attacks the connections of the brain and kills brain cells. The progression of the disease is usually very gradual. Some people live as long as 20 years, although the average is 6-8. If they progress to the late stages, they often become bed-bound, non-verbal, require assistnace with all activities of daily living and have profound difficulties with movement and swallowing.

The medications do not prolong life, but for many people they significantly enhance the quality of life by enabling people to remember more and do more.

For more information, please call the Alzheimer's Association at 800-272-3900.
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okie ridgerunner, small town (11/2/2008 6:29:41 PM)
This is very sad. and this shows it can and may happen to any one of us. so we need to try to enjoy each day the best we can. it is happening to a lot more pepole theses days, not just the very old, like we used to believe.
 

 
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